HIV Crisis in Deaf Community

Aug. 15th, 2017 07:04 pm
jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
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The HIV Crisis In The Deaf Community

This excellent article highlights big troubles.

https://intomore.com/into/a-sign-of-trouble-the-hiv-crisis-in-the-deaf-community/f8ff168f3766425d

Just one story:

A gay Deaf man new to DC attempts to set up an interpreted appoint at a queer friendly clinic; after waiting for 45 minutes he's escorted to a room with a video relay interpreter:

begin quote

All I wanted to do was to set up an appointment at a later date with the doctor and a live ASL interpreter. That’s all I want.

She looked at the note, smiled, and wrote, “We don’t do that here. ASL interpreters are expensive. This is a cheaper alternative.”

I looked at the note, shook my head, “No.” I got the feeling that this was not going to be a “Deaf-friendly” nor “Deaf accessible” and got up and started to leave when she grabbed my arm. I looked at her quizzically with her writing furiously on the note. She wrote, “You do qualify for our services but you have to understand, we can’t afford it.”

I looked at her disappointedly and wrote: “I find it ironic that the HIV-positive community is knowledgeable with the ADA law and uses it to the betterment for the community and yet can’t provide for their own.”

quote ends
Some context: Since Washington DC is home to Gallaudet University, they have a very large and skilled interpreter workforce. Two videos with ASL, captions, and audio )

I’m a breathing body

Aug. 15th, 2017 07:28 am
jesse_the_k: Finding Nemo's Dory, the adventurous fish with a brain injury (dain bramage)
[personal profile] jesse_the_k
Part of my daily healthwork routine is silent meditation. I avoided meditating for decades because I thought I had to be a serene person to do it. I learned otherwise. Using audio guidance or timer, I concentrate on my breathing. I become my breathing body. My breath is a constant companion, always happening until I’m dead.

Concentrating on my breath helps me relax and it also reminds me that everyone on the planet is also a breathing body. This commonality calms the terror attendant on our current moment. My ideology, my fears, my impairments aren’t magicked away, but I am always a breathing body, just like everyone else.

It’s called meditation practice because that concentration is a skill. While I’m meditating I find myself thinking about the past or planning for the future. This is the magic moment. When I notice I’m thinking, I softly name it, and then return to my breathing.

I learned to meditate via an 8-week MBSR class, mindfulness based stress reduction, offered by my therapist. Since then, I’ve loved using Insight Timer, the meditation tool for iOS and Android. You do have to create a login, but they haven't spammed me. Insight Timer has tons of useful features, but at its most basic it’s got a great timer, with lovely bells, background white noise, and finely adjustable intervals. When you’re online, Insight offers hundreds of guided meditations, including introductory lessons for absolute beginners. (Other audio available: yoga guidance, Dharma talks, affirmations.) Excellent search functions let me bookmark (for example) just the 10–19 minutes long, secular, male voice, meditations designed for pain.

https://insighttimer.com

All of the audio content is also available from this web site.

Nifty Beading Videos with Captions

Aug. 14th, 2017 06:34 pm
jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
[personal profile] jesse_the_k
Are available from Jill Wiseman

https://www.youtube.com/channel/UC4PihGJSYFNMqzxC4k-dh6w

I downloaded a couple to take up north with me when I disappear at the end of the week until September.
jesse_the_k: Text reads: "I'm great in bed ... I can sleep for days" (sleep for days)
[personal profile] jesse_the_k
goofy context )
http://journals.sagepub.com/doi/full/10.1177/1359105317722370
is the intro to the special issue of the journal, with actual science, but behind another paywall


I'm not making light of the underlying issue. I've been sick since 1988, I know the PACE trial is evil, it just amuses me what my unedited brain creates.
jesse_the_k: Sprinter with right AK prosthetic leg, shot from neck down (prosthetic sprint)
[personal profile] jesse_the_k
Spent great day with Sasha-feather

Made beet root/sweet potato/kale/onion chicken curry soup with yogurt. So tasty i got to eat the whole pot!

Watched a delightful educational video on YouTube. I'm on mobile so I can't embed*
https://www.youtube.com/watch?v=f7KSfjv4Oq0
But the animation is stellar, the narration Oh So British, the captions excellent, and I actually learned something!

Also finished a six-hour BET/CBC coproduction "The Book of Negroes." Watch for free on the CBC site if you're in Canada; currently on HULU in the US. Beautifully filmed. More on the substance anon.

Revised my site style/layout -- again.

*That is, YT won't offer the full embed code, even when I request desktop site. is there a trick I'm missing?
jesse_the_k: Rubik's Cube puzzle with all-white faces labelled in braille (Braille Rubik's Cube)
[personal profile] jesse_the_k
In conversation with yesterday's Mingus essay, here's Deaf-Blind poet John Lee Clark addressing forced separation because of deaf-blindness, which he calls distantism:

begin quote
Each form of social bigotry has its distinctive personality and its unique set of intertwining evils. excerpt and context )

Mia Mingus on FORCED INTIMACY

Aug. 8th, 2017 12:53 pm
jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
[personal profile] jesse_the_k
Mia Mingus has written another short, powerful essay on interacting with nondisabled people. She examines how we are forced into intimate interactions because we are disabled.
a taste )

It's challenging to maintain my self-confidence while experiencing the assumption that my boundaries don't exist, or don't count. Self-compassion meditation helps some. Snarkiness helps some.
jesse_the_k: Well nourished white woman riding black Quantum 4400 powerchair off the right edge, chased by the word "powertool" (JK powertool)
[personal profile] jesse_the_k
This 4:10 captioned video provides great background on the "wheelchair symbol," more formally known as the International Symbol of Accessibility. Using plain language, the presenter explains its history, application, why it applies to more than wheelchair users, and why it might need changing.

If you're disabled, how do you feel about this symbol? Do you find it helpful in the abstract? Is it deployed usefully in your life? Do you know of any different symbols that don't use wheelchairs?
video under the cut )
jesse_the_k: Large ewe stares at the viewer while her adolescent lamb runs away (lamb runs away from ewe)
[personal profile] jesse_the_k
Swam two extra lengths on Wednesday, been going downhill since.

So nothing to post today, however, this true story about holding on to old, inept technology is so funny that you'd better visit the toilet first:

http://thefourthvine.dreamwidth.org/190113.html

Making a Better Cup of Tea

Aug. 5th, 2017 11:58 am
jesse_the_k: Modern design teapot with two cups (Share tea with me)
[personal profile] jesse_the_k
I love tea—I drink a gallon a day. I drink from a thick, 16-oz, glass, better to warm my hands with. I use a tablespoon of loose tea in a single-use paper tea filter bag.

I'm lucky my local co-op carries many delicious loose teas. I adore Rishi tea (from Milwaukee)1, particularly their Iron Goddess of Mercy Oolong, Jade Green, and Mahgreb Mint Green, as well as my own special mix2.

I've discovered that tea tastes so much better when it's brewed at the right temperature. Oolong brewed at 175° or Green at 165° is delicious. (Boiling water is the right temp for mint tea and other herbals.)

How to get the temp right without a fancy pot )
jesse_the_k: mirror reflection of 1/3 of my head, creating a central third eye, a heart shaped face, and a super-pucker mouth (Default)
[personal profile] jesse_the_k
Will wonders never cease?

I just contributed original content to a Tumblr post. The post is full of graphics, which I am too lazy to describe, so I winnowed it down to two paragraphs. Here's a tl;dr on eliminating things you don't want to read from your Archive of Our Own searches.
tl;dr )

Requiem for a screensaver

Aug. 3rd, 2017 07:53 pm
jesse_the_k: Cartoon drawing of original Mac with screen displaying the "happy Mac" smile indicating successful boot (old Mac)
[personal profile] jesse_the_k
Back in the mid-90s, a lovely tool called After Dark came to the Mac. No screensaver was built in to Mac OS. MThe diligent programmers at Berkeley Systems needed to do a lot of low-level work to paint the screen with pretty images -- most famously, flying toasters.

If you're curious, a dozen of the original After Dark screen savers are available, simulated in CSS, here
https://www.bryanbraun.com/after-dark-css/

The reason those programmers were so good at directly addressing the Mac screen is they'd written a utility called inLarge, a screen enlarging system hack which permitted magnifcation of the (then tiny) Mac screen. Yet again, assistive technology users were the alpha testers.

Berkeley Systems made big money on After Dark, and reinvested some into further assistive tools for the Mac, including its first screen reader, outSpoken. But users and developer both saw the writing in the wall: the best Mac screen access software needed to be baked in at a very low level, which Apple has finally done with VoiceOver and the other AT that ships with all Mac products now.